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2003 Journal Links

Oct 26th - Archie is born
Oct 31st - Today, Archie is five days old
Nov 1st - We called the NICU at 3 a.m.
Nov 3rd - Archie's billirubin is down
Nov 4th - Today was Archie's due date
Nov 6th - Yesterday was the most trying day of our lives
Nov 9th - I think we knew that something
Nov 11th - Good day, bad day
Nov 13th - Archie looked great this morning
Nov 16th - If prayers were audible...
Nov 18th - I got to hold my son today
Nov 19th - John is back working again
Nov 20th - Archie slept all day
Nov 22th - I think I know what it’s like to be deaf
Nov 24th - Archie decided to stop fighting the ventilator
Nov 27th - Thanksgiving At the NICU
Nov 28th - John held Archie tonight
Nov 30th - If Archie doesn’t like something, he let’s you know
Dec 3rd - Archie will go for his first plane ride
Dec 5th - Tomorrow Archie will travel to Charleston, to the city where his father was born
Dec 8th - We got up extra early
Dec 10th - Although I spent the entire day at the hospital...
Dec 14th - The doctors attempted to extubate Archie twice
Dec 15th - We’re going to buff ‘em and shine ‘em up
Dec 17th - Santa Claus introduced himself to Archie today
Dec 18th - Archie is doing well
Dec 19th - Archie is continues to do well
Dec 23rd - It is Tuesday morning
Dec 26th - “Are you sure you’re Archie Moore?”

2004 Journal Entries

Jan 4th - John is holding Archie and feeding him his bottle
Jan 11th - We dressed him in a light blue sleeper
Jan 14th - Oh, how I've missed Days of Our Lives
Jan 18th - Patient & Family Satisfaction Improvement Survey
Jan 20th - Archie discovered his hands last weekend
Jan 15th - Babies like this
Jan 29th - Archie Moore is a flirt
Feb 11th - I'm watching Archie study his fist
Feb 23rd - Guess who gained eleven ounces his first week off Portagen?
Mar 2nd - My throat began feeling raw yesterday afternoon
Mar 10th - Tummy Time
Mar 15th - I hate those machines!
Mar 31st - Archie was not interested in his early intervention therapies today
Apr 13th - Well-baby check-up
Apr 21st - Today Archie's world got a little bit bigger
May 7th - It's difficult to write
May 30th - I took Archie to the CDS yesterday
Jun 20th - I know I don't update my journal as frequently as I once did
Jun 29th - We Achie to Budka's
Aug 26th - Archie fights sleep with a fierce tenacity
Sep 12th - Yeah, I know. I need to post more
Oct 26th - Today you are one


Archie discovered his hands last weekend
by Anne Moore

Archie discovered his hands last weekend. This morning I watched him study his fist as he lay in his Pack-n'-Play, listening to his sunshine toy play classical music. He held his hand in front of his face, turning his clenched fingers from side to side. After a minute or so of intense analysis, Archie thrust his hand into the air, away from his face, and announced his discovery. "Ooouuhh!," he declared. "Ooouuuuhhhh!"

Later, as I fed the little man his bottle, he used both of his hands to push the bottle away. "Take break?" I asked. The baby let out an exacerbated "ahhh" in response. "Ok," I agreed. "Take break."

Archie then raised his arm and held his fist in front of his face. He studied his hand again, cocking his head from side to side in deep consideration. "That's your hand," I told him. "You're going to learn to do so many things with your hands. You'll see," I promised. After Archie finished examining his hand, he looked me in the eye and opened his mouth wide, indicating that he was again ready to drink. As Archie finished his bottle and I put him down for a nap I marveled at how quickly my son is now able to drink 90 ccs. Most parents take their child's ability to drink from a bottle for granted. But for my husband and I, each cc our baby drinks is a tiny victory.

Last night I had dinner with ten women, all mothers of children with Down syndrome. It was therapeutic to spend time with mothers who know what it's like to face the sorts of difficulties and fears we've faced with Archie. I enjoyed meeting each woman and look forward to the friendship I'll share with them.

Right now the baby is stirring, awakening from his slumber. He'll soon cry out, summoning me to scoop him out of his crib and cuddle him close. I'll drop everything to accommodate his request. This holding thing, it's still new for Archie and me. The only permission I need now to pick my baby up comes from the little man himself. And he grants me the privilege several times a day. We are both so fortunate.

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