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2003 Journal Links

Oct 26th - Archie is born
Oct 31st - Today, Archie is five days old
Nov 1st - We called the NICU at 3 a.m.
Nov 3rd - Archie's billirubin is down
Nov 4th - Today was Archie's due date
Nov 6th - Yesterday was the most trying day of our lives
Nov 9th - I think we knew that something
Nov 11th - Good day, bad day
Nov 13th - Archie looked great this morning
Nov 16th - If prayers were audible...
Nov 18th - I got to hold my son today
Nov 19th - John is back working again
Nov 20th - Archie slept all day
Nov 22th - I think I know what it’s like to be deaf
Nov 24th - Archie decided to stop fighting the ventilator
Nov 27th - Thanksgiving At the NICU
Nov 28th - John held Archie tonight
Nov 30th - If Archie doesn’t like something, he let’s you know
Dec 3rd - Archie will go for his first plane ride
Dec 5th - Tomorrow Archie will travel to Charleston, to the city where his father was born
Dec 8th - We got up extra early
Dec 10th - Although I spent the entire day at the hospital...
Dec 14th - The doctors attempted to extubate Archie twice
Dec 15th - We’re going to buff ‘em and shine ‘em up
Dec 17th - Santa Claus introduced himself to Archie today
Dec 18th - Archie is doing well
Dec 19th - Archie is continues to do well
Dec 23rd - It is Tuesday morning
Dec 26th - “Are you sure you’re Archie Moore?”

2004 Journal Entries

Jan 4th - John is holding Archie and feeding him his bottle
Jan 11th - We dressed him in a light blue sleeper
Jan 14th - Oh, how I've missed Days of Our Lives
Jan 18th - Patient & Family Satisfaction Improvement Survey
Jan 20th - Archie discovered his hands last weekend
Jan 15th - Babies like this
Jan 29th - Archie Moore is a flirt
Feb 11th - I'm watching Archie study his fist
Feb 23rd - Guess who gained eleven ounces his first week off Portagen?
Mar 2nd - My throat began feeling raw yesterday afternoon
Mar 10th - Tummy Time
Mar 15th - I hate those machines!
Mar 31st - Archie was not interested in his early intervention therapies today
Apr 13th - Well-baby check-up
Apr 21st - Today Archie's world got a little bit bigger
May 7th - It's difficult to write
May 30th - I took Archie to the CDS yesterday
Jun 20th - I know I don't update my journal as frequently as I once did
Jun 29th - We Achie to Budka's
Aug 26th - Archie fights sleep with a fierce tenacity
Sep 12th - Yeah, I know. I need to post more
Oct 26th - Today you are one

 

Yeah, I know. I need to post more
by Anne Moore
9/12/2004

Yeah, I know. I need to post more. But Archie keeps me very busy. Babies are like that, I suppose. Since so many of you write inquiring about Archie’s progress, I thought I’d take a few moments to briefly fill you in on my 10-month-old’s development.

Archie has four teeth, two on top and two on the bottom. According to his grandfather, the retired dentist, those teeth are breaking through in the correct order. Cutting teeth definitely throws Archie for a loop, though. He’s irritable and sleeps and eats poorly for about a week each time a new tooth arrives. It’s quite a process, but worth the frustration. Those teeth are just so cute once they’ve broken through.

When he’s not teething, Archie is a great eater. He’s down to four bottles a day, and eats baby food three times a day. Archie does so well with his spoon. That is quite an accomplishment for a little guy with Down syndrome, let alone a baby who spent a very long time intubated. Each meal is tiny celebration. Right now Archie and I are working on eating Gerber puffs and teething biscuits. What a fun endeavor! I swear the little guy would be much heavier if he would just sit still for a moment. Archie is always moving something. Hand, foot, leg, arm… one or all four are always going, going, going.

Archie is able to get up on all fours, holding his head up high. Most times he rocks on his knees, but he recently began moving forward on one leg. Some days Archie moves forward with a two-armed military crawl. Other days he simple rolls where he wants to go. Although he’s still working on crawling forward, Archie can definitely crawl backwards. And he can also crawl down backwards off my lap onto the floor, where he loves to stand with my assistance and play with toys propped on the couch. Archie also likes to walk, with me holding him underneath his arms. I love watching him as he watches his feet move forward, right, left, right and left.

I’m also happy to report that Archie is now able to sit unassisted for short periods of time. He loves sitting on the kitchen counter, watching his father cook dinner. He often calls to John then, clapping his hands, “Da! Da! Da! Da!” Archie has a sign language video that he and I watch together, him sitting on my lap. I thought he responded to the video because he liked the kids’ faces and the fun songs, but apparently he’s also paying attention. The other night as John boiled shrimp, Archie started yelling, “Da, da, da!” and doing the sign for “father.” That may have just been coincidence, but John and I are choosing to believe otherwise.

One of my favorite times of day is Archie’s bath time. The little guy absolutely loves to sit in his tub and splash, covering himself in soap suds. He fishes his fist-sized rubber duckies out of the water and chews on them. If he’s not chewing on his bath toys, he’s banging them together. After his bath, Archie loves to look at himself in the mirror. He claps his hands and yells at the top of his lungs, “Baa! Bee! Baa! Bee!”

“Yes, Archie,” I answer, smiling. “That’s right. You’re the baby. Baby, baby.” Archie laughs then and I do, too. We laugh and laugh.

Each night before bed Archie and I read together. I love that Archie enjoys books. He stares at the pictures and follows my finger across the pages. If the pages are thick enough, Archie helps me to turn them. As we read, Archie will every so often turn his face upward to look at me. He smiles and then turns his attention back to the book. Oh, how I love that interaction with my son.

I took Archie to a well-baby check-up last Friday. Dr. Jacques was very pleased with his progress. Here we are, almost a year from Archie’s birth, and I can hardly believe how far we’ve come. Archie has no medicine, no murmur and hopefully no menacing memories of his first few months.

“You do a good job with him,” Dr. Jacques told me. “I hope you’re enjoying him, too.”

Right then Archie laid his head on my shoulder and patted me on the back, something he often does. “I do,” I answered as Archie lifted his head and shouted, perhaps answering, too.

“Hmmmmmm!” he said and then smiled.

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