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2003 Journal Links

Oct 26th - Archie is born
Oct 31st - Today, Archie is five days old
Nov 1st - We called the NICU at 3 a.m.
Nov 3rd - Archie's billirubin is down
Nov 4th - Today was Archie's due date
Nov 6th - Yesterday was the most trying day of our lives
Nov 9th - I think we knew that something
Nov 11th - Good day, bad day
Nov 13th - Archie looked great this morning
Nov 16th - If prayers were audible...
Nov 18th - I got to hold my son today
Nov 19th - John is back working again
Nov 20th - Archie slept all day
Nov 22th - I think I know what it’s like to be deaf
Nov 24th - Archie decided to stop fighting the ventilator
Nov 27th - Thanksgiving At the NICU
Nov 28th - John held Archie tonight
Nov 30th - If Archie doesn’t like something, he let’s you know
Dec 3rd - Archie will go for his first plane ride
Dec 5th - Tomorrow Archie will travel to Charleston, to the city where his father was born
Dec 8th - We got up extra early
Dec 10th - Although I spent the entire day at the hospital...
Dec 14th - The doctors attempted to extubate Archie twice
Dec 15th - We’re going to buff ‘em and shine ‘em up
Dec 17th - Santa Claus introduced himself to Archie today
Dec 18th - Archie is doing well
Dec 19th - Archie is continues to do well
Dec 23rd - It is Tuesday morning
Dec 26th - “Are you sure you’re Archie Moore?”

2004 Journal Entries

Jan 4th - John is holding Archie and feeding him his bottle
Jan 11th - We dressed him in a light blue sleeper
Jan 14th - Oh, how I've missed Days of Our Lives
Jan 18th - Patient & Family Satisfaction Improvement Survey
Jan 20th - Archie discovered his hands last weekend
Jan 15th - Babies like this
Jan 29th - Archie Moore is a flirt
Feb 11th - I'm watching Archie study his fist
Feb 23rd - Guess who gained eleven ounces his first week off Portagen?
Mar 2nd - My throat began feeling raw yesterday afternoon
Mar 10th - Tummy Time
Mar 15th - I hate those machines!
Mar 31st - Archie was not interested in his early intervention therapies today
Apr 13th - Well-baby check-up
Apr 21st - Today Archie's world got a little bit bigger
May 7th - It's difficult to write
May 30th - I took Archie to the CDS yesterday
Jun 20th - I know I don't update my journal as frequently as I once did
Jun 29th - We Achie to Budka's
Aug 26th - Archie fights sleep with a fierce tenacity
Sep 12th - Yeah, I know. I need to post more
Oct 26th - Today you are one

 

Although I spent the entire day at the hospital...
by Anne Moore
12/10/2003

Although I spent the entire day at the hospital, I was only able to sit beside Archie’s bed for about an hour. I had to leave the unit when the doctors inserted an arterial line in the little man’s groin. The arterial line will allow the nurses to draw more accurate blood gases that read the oxygenation of the blood in the capillaries. Because Archie is a “tough stick,” it took the pediatric cardiologist quite some time to insert the line. I tried to get into the unit several times, but was turned away each time.

“May I help you?”

“Hi! This is Archie’s mom,” I spoke into the intercom. “Have they finished with him yet?”

My question was answered each time with the mechanical opening of the doors to the unit. Archie’s nurse would step into the hall and explain to me why I couldn’t come back into the unit yet. Mostly I was turned away because the doctor was still working on Archie, although I was sent back to the waiting room twice because doctors were performing procedures on other babies in the unit. Although I hate that the doctors are sedating the little man, but the fact that Archie sleeps all of the time helps to alleviate some of the guilt I feel over not being able to spend every moment with my son.

The doctors are still attempting to wean the baby from the ventilator. He is breathing over the ventilator and is inhaling room-quality air. Last night he was rousted from his sedation for a C-PAP trial, which he tolerated very well. I was told that Archie’s blood gas following the trial was excellent, even better than it had been earlier in the day.

“If we can wake him from sedation after inserting the arterial line, we’ll give the C-PAP another go,” Archie’s attending pediatric cardiologist explained. He looked at me and smiled. Upon finishing his examination, he said to the baby, “Archie, you know what’s expected of you today. Let’s give it a go.”

Another one of Archie’s doctors informed me that the baby’s most recent CBC revealed only 10 percent blast cells, one of Archie’s lowest counts yet. The doctor also told me that the blood analysis revealed that Archie is maintaining his calcium on his own. “How about that, Archie?” I exclaimed. “Looks like MUSC is your good luck charm!” Archie’s doctor smiled in response.

“I certainly hope so,” she replied sweetly.

Tonight I’ll travel back to MUSC, hoping to spend more time with my six-week-old son. My sister-in-law Karen and I are planning to eat together tonight before going over to the hospital. Whereas my parents rallied around John and me to support us when Archie was being treated in Greenville, John’s family has truly gone out of their way to support us now that Archie is in Charleston. We are very lucky, John, Archie and I.

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